Friday 29 May 2015

Hospital stays, kidney drains and anniversaries


Someone once said to me why can't I just have a quiet life. Well, believe it or not I do try to but life just doesn't want to be quiet with me around - especially this month!

Since my emotional venting in my last blog post, so many of you were kind enough to send me messages of support, positivity and just general nice-ness which I hugely appreciated. Fighting any illness can be very lonely and any support I receive, wherever it is from, is always valued. Thank you so very much.

Anyway, I knew I was ill but I hadn't realised just how ill! Early May Bank Holiday was just a blur of nausea & unpleasantness where I could barely stand let alone walk.  Obviously, it couldn't go on like this and as I was so unwell, I got admitted to hospital. Two hospitals in fact. Still not entirely sure why but there you go!

After various tests, scans and numerous injections on two arms that made me look like I'd been on heroin, it was concluded that my infection markers were very high. My compromised immunity through the cancer treatment had been attacked and I was seriously ill. In addition to all of this, scans also showed my right kidney had an infected cyst which needed draining immediately and so under local anaesthetic a brilliant doctor did just that. Painful but an incredible bit of medical procedure conducted that did the trick. I just had to have a weird tube/bag contraption sticking out of my side from my right kidney for a couple of days which enabled me to see all the gunk that was making me so ill. Truly revolting but fascinating at the same time!

And er, that's it!?! Two weeks in hospital summed up in two paragraphs. I'm still not up for conveying the immense anxiety, fatigue, loneliness, vulnerability and sadness I felt during this time but I'm sure you get the picture...
I hasten to add that there was also kindness, love, laughter and hope during my stay which made me feel strong and determined. It was just really bloody hard. Thank you to those of you who visited me - words cannot express how much you lifted my spirits. I'm truly sorry for the state of my greasy hair however.


One of the better views in hospital but imagine just staring at this all day...

One of the doctors had a problem fitting my cannula - hence all the bandages!

While all this was going on, there was also my 'cancer-versary' on the 19th May - five years since that fateful day of being told my cancer diagnosis. Or rather five years of being still here and basically saying f-&k you cancer and celebrating with blackberry and apple crumble cake and snowconut ice cream. Very much the way forward I tell you.

There was also our 2nd wedding anniversary on the 25th May. Two years already!? Just a quiet celebration this year because of my recovery and this involved a tasty brunch in a newly discovered restaurant, a 3D matinee showing of 'Mad Max Fury Road' (oh the romance?!) and a gorgeous dinner at our favourite restaurant in Dorking. There was also an afternoon spent with a picnic at Nymans on the Saturday before which was lovely.


Me with a carved frog at Nymans before I lost my energy

Pretty bluebells at Nymans

After all these years with Mat I'm glad that he's by my side on this journey along our own 'fury road'. I'm sorry it's not necessarily the quietest of roads but one littered with our own 'war boys', valkyries and strange warriors. However, we fight them off together and although it's hard, Mat, thank you for the love, support, honesty and resolve. In essence, thank you for making me your Imperator Furiosa to your Mad Max.


Imperator Furiosa and Mad Max having anniversary brunch

Enough said



Friday 1 May 2015

Fed up, angry, upset, scared

I am all of the above right now and it is taking whatever strength is inside me not to physically and mentally crumble. It just seems so much harder this time around.

I'm really fed up with this cancer. Fed up with the chemo, the drugs, the side-effects and the fact my life has been turned upside down and I cannot be just 'me'. I'm fed up with not being able to do things spontaneously. I'm fed up with my mind letting me down. I'm fed up with the mood swings. I'm fed up with watching from the sidelines. I'm fed up with being left out. I'm fed up being left at home not able to do things.

I'm angry I'm on yet more drugs because my body has let me down again, this time because of a kidney/bladder infection. Yet another round of hospital tests yesterday, being spoken to like an 8 year old about bladder function and a "there, there" the antibiotics will sort you out attitude.

I'm upset at how I can't control what is going on inside my body. The sudden onset raging fever, the uncontrollable shivers, the fatigue, the false steroid energy, the mood swings, the general malaise. It's just f-cking relentless.

Most of all I'm scared that this is it. The beginning of the end. And I still have the stem cell transplant to look forward to in the summer. I scared myself reading back on the details from last time on this blog. Did I really go through all that? I just feel so numb.

Who would be me? Who would want to be around me? Even I don't like me right now.

I think I better go before yet more tears are involved. 

I need to keep reminding myself of this from the great man.